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SVreX
SVreX SuperDork
1/27/11 7:09 p.m.

I know this is not up some of your alley, but for those of you so inclined, I'd appreciate prayers for a young friend.

T.C. is 12 years old, and was diagnosed today with brain cancer. She's the little sister of one of my employees.

Thank you.

Morbid
Morbid Reader
1/27/11 7:19 p.m.

Oh no! Thinking of her!

Toyman01
Toyman01 GRM+ Memberand SuperDork
1/27/11 7:29 p.m.

We will put her and her family on the prayer list. That's going to be a long row to hoe for everyone.

f86sabjf
f86sabjf Reader
1/27/11 7:30 p.m.

on our prayer list here

MrJoshua
MrJoshua SuperDork
1/27/11 7:38 p.m.

Very very sad thing to hear. She is in our thoughts.

stan
stan GRM+ Memberand SuperDork
1/27/11 8:16 p.m.

Prayers and hopes for her future...

Duke
Duke SuperDork
1/27/11 8:23 p.m.

I don't pray, but I certainly wish her the best of luck and medical science. My thoughts are with her and her family.

My mother survived brain cancer after having a walnut-sized tumor removed, and she was a tired 70-something old lady. I'm sure that a 12-year-old girl has even better chances. Please keep us posted!

Drewsifer
Drewsifer HalfDork
1/27/11 8:30 p.m.

We're praying for her!

motomoron
motomoron HalfDork
1/27/11 9:09 p.m.

My circumstances with this are way out past standard deviation regarding how I found out about a brain lesion, what kind it turned out to be, where it was, and any number of other things.

All of that said - I've been there. Looking at the blob on the MRI and all that follows, which admittedly in my case has at times sort of sucked, but nowhere nearly as bad as it does for most of the rest of the folks in the waiting room where I go for my follow up.

Information is king - and the quality of care is very, very important. I'm really fortunate to live close to NIH and Johns Hopkins - Where does she and her family reside? I'd seek out one of the major centers of brain tumor research and get the best possible and most aggressive care.

For her to be truly accurately diagnosed she would have to have had surgery and the pathology on the lesion determined. If she's only had an MRI and disclosed the mass, things may not be so dire yet.

I'm not a person of faith but I do wish her the very best fortune and best possible outcome. If I can be of any assistance please feel free to contact me via PM.

The American Brain Tumor Association...

Is a very good resource.

DoctorBlade
DoctorBlade HalfDork
1/27/11 9:15 p.m.

That bites.

SVreX
SVreX SuperDork
1/27/11 9:36 p.m.

motomoron is correct on this one.

I mis-spoke earlier- wasn't thinking too clearly.

She has a brain tumor. Has not yet had surgery to determine malignancy, etc.

She's going to Atlanta tomorrow to begin more accurate and in-depth evaluation/ surgery, etc.

Thanks for your thoughts and prayers.

motomoron
motomoron HalfDork
1/28/11 3:03 a.m.

It's not ever preferable to have a brain tumor - this I can say with the same certainty as my assertions about angle grinder safety and starting lug nuts before gunning them on - it's based on hard-won personal experience.

That said, pediatric brain tumors offer a better chance of being one of the more benign varieties. The GBMs and high grade astrocytomas and oligodendrogliomas usually turn up in the heads of grownups.

Funny thing about brain surgery - it's not as bad from a pain and general hatefulness standpoint as stuff on the balance of the body - other than the incision and the very, very odd night in the neuro-CCU I was in n' out in 48 hours though they made me take a couple weeks off work.

I'm absolutely fine going on 5 years later - very uncommon low grade lesion in my right frontal lobe, which as a right handed individual is essentially a "backup drive".

Still can't play the piano though...

carzan
carzan HalfDork
1/28/11 5:31 a.m.

She has my prayers and hope for a speedy recovery and a good life.

bravenrace
bravenrace SuperDork
1/28/11 6:00 a.m.

In reply to SVreX:

Done.

SVreX
SVreX SuperDork
1/28/11 6:27 a.m.

In reply to motomoron:

Your input is helpful. Thank you.

Rusted_Busted_Spit
Rusted_Busted_Spit GRM+ Memberand Dork
1/28/11 11:10 a.m.

Done.

Strike_Zero
Strike_Zero HalfDork
1/28/11 11:14 a.m.

wow

Prayers for successful procedure and speedy recover. Comfort to fam and friends. . .

motomoron
motomoron HalfDork
1/28/11 12:44 p.m.
SVreX wrote: In reply to motomoron: Your input is helpful. Thank you.

The handful of forums I really follow have something in common:

They're communities of people who share a common interest and are willing to share knowledge.

In the earliest, darkest days of when I - scratch that - WE, as in myself and my wife who married all my parts including those with bad sh1t growing in them - found ourselves on this path we had the very good fortune of being introduced to an awesome person. She'd been through essentially my exact situation but for the "found the tumor incidentally as a result of a slalom skateboarding mishap" part.

She shared her experience and demystified the process. Ultimately, it was her introduction that afforded access to the neurosurgeon I'd been trying to see.

I try to be helpful in general, but this is something where I can hopefully give a little comfort or assist with knowledge which could give someone an advantage.

A very good friend said this to me as I was working my way through the process:

"Luck equals skills, attitude and knowledge combined with favorable opportunity"

I'm confident she'll be "lucky"

dean1484
dean1484 GRM+ Memberand Dork
1/28/11 1:12 p.m.

Prayers are inbound from the Smith Family

poopshovel
poopshovel SuperDork
1/28/11 1:28 p.m.

Done, done, and hopeful that she'll live a very long, happy, rewarding life!!!

slantvaliant
slantvaliant Dork
1/28/11 1:30 p.m.

Let's hope and pray it's one of those benign oddities. And that her medical team is sharp and considerate.

Curmudgeon
Curmudgeon SuperDork
1/28/11 6:08 p.m.

Man, that bites. My wishes and hopes for a full recovery.

z31maniac
z31maniac SuperDork
1/28/11 8:10 p.m.

Best wishes for a full and speedy recovery.

SVreX
SVreX SuperDork
1/29/11 4:26 p.m.

The surgery found the tumor to be benign, and that she has an accumulation of fluid at the base of her skull. Implanting a stint to drain off fluid. Not anticipating long term complications.

Thank you for your prayers.

I'll post further updates.

MrJoshua
MrJoshua SuperDork
1/29/11 5:06 p.m.

Very good news.

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